Thoughts on a recent article about being a warrior

One reason I don't post to this blog as often now is I'm not sure if people are still interested in hearing my thoughts on these topics now that I'm "cancer free".  I guess if you're not interested you won't read it.  Anyway, let me know if you like these posts.  This entry is my thoughts around a recent article that appeared in New York Magazine.  I encourage you to read the article for yourself too. 


Good Morning America anchor Amy Robarch spoke at an event for Gilda's Club, an organization to support those living with cancer.  The wife of the author that wrote the article died from breast cancer a few years ago.  Needless to say, he wasn't impressed by Robarch's speech. I agree with many of the author's points, but while I didn't see her speech, I'm inclined to give Robarch the benefit of the doubt--maybe she was trying to be inspirational or hopeful.  Who knows.  If the audience was comprised of those living with cancer, maybe she misunderstood and should have had a better understanding of her audience.  As the author points out, most women don't need to get a double mastectomy.  However, if Robarch did that because she felt it would give her peace of mind, then that's her right.

One of Robarch's main themes was she "kicked cancer's butt".  There are many images associated with cancer--fighting it, beating it, kicking its ass.  (As an aside, I wrote a paper about this while in grad school at Tufts.  If I had any idea where that paper was, I'd love to read it now.)  Heck, even the title of this blog is centered around the same idea--cancer can't catch me.  When I went through treatment, those nine months were solely focused on just getting through it.  I didn't feel inspired or empowered.  I didn't feel like I was fighting it, beating it or kicking its ass.  I was terrified and trying to deal with the diagnosis and how my life had instantly changed.  The chemo days were the darkest.  There were many days that I didn't know if I could get through it.  I would cry at how shitty I felt and how the whole thing felt like it would never end.  Chemo SUCKED.  (Am I drama queen?  Perhaps.)

What I took out of the experience is while sometimes I still feel very vulnerable, I do feel tougher than I did before.  I was pretty tough before, but now I feel really tough.  Not because I beat cancer, but because I survived the last year and I'm still standing.  Maybe to some that means I kicked cancer's butt but it doesn't really resonate with me that way.

While I might be tougher, I still get scared.  I just saw on Facebook that a friend of a friend just passed away from breast cancer.  She was pregnant when she was diagnosed back in 2010 and the cancer came back.  Like me, she has two little kids.  She has an amazing spirit and some of her posts were so similar to mine it was eerie.  To say this is feeding into my deepest fears is a huge understatement.  I perused her blog but I had to stop because it was making me sad and scaring me.  But it's been haunting me all day.

The truth is that while many of us "beat cancer", it doesn't mean that those that didn't survive weren't strong enough to do it.  I didn't "beat" cancer because I was fought harder than somebody else or because I wanted it more.  I beat cancer because it was caught relatively early and my cancer responded to treatment.  Being in good physical shape probably helped my recovery, but who knows. I bet the majority of us know people who have died from cancer--while maybe some of them weren't in the best of health because of other conditions, none of them were "losers".  Everyone that I've known died from cancer was a fighter.  If my cancer metastasizes some day, does that mean I didn't fight hard enough? Methinks no.

Stuart Scott is an ESPN analyst.  I wasn't aware that he'd been battling (there's that word again, it's hard to escape it) abdominal cancer for the last several years until I heard about his speech at this year's ESPYs.  One of his quotes was, "When you die, that does not mean that you lose to cancer. You beat cancer by how you live, why you live and the manner in which you live." I love this quote.  Cancer will kill many of our family and friends and we will hate it for that, but our loved ones are not, and never will be losers.

Some updates and a movie warning

It's been almost two months since I've written on this blog.  As a reminder, my book review blog is alive and well.  A few recent events have inspired me to check in and share my thoughts on what's going on.

First, I just realized that I never posted about finally getting a second opinion on my surgery.  As you might remember from past blogs, like this one, this one, and this one, my plastic surgeon and I haven't always connected. I will say, I had my final check-in with him back in June and he was the most engaging he's ever been.  Anyway, I went to MGH to see a plastic surgeon that a friend of a friend recommended.  The surgeon was so nice, but it turned out she didn't do the surgery I was going to have and she strongly recommended....can you guess?  My plastic surgeon.  She did acknowledge that his personality wasn't the best.

At this point I've come to terms with it.  He does good work, I get it.  After next month, my interaction with him will be minimal to nonexistent.  I'm a little anxious about the surgery because it's long--12 hours or so.  And the recovery is painful.  I just need to focus on the tummy tuck and the new boobs.  Work has been great about giving me the time I need, but I have a feeling I'll be back online by the week after surgey.  Unless I'm in so much pain that I can't bear it.  It's totally professional to send out work emails and participate on conference calls while on pain meds, right?

On another note, I saw Guardians of the Galaxy a few weeks ago.  I saw this movie in Maine with Aaron, two of my nieces and my nephew.  The movie's opening scene is a boy listening to music on his walkman.  As the shot pans out, it's clear he's sitting in a chair in a hospital.  I got a little apprehensive at this point.  His grandfather comes by to say that his mom wants to talk to him.  His mom is dying.  Of cancer.  Cue my waterworks as one of my worst fears is presented on the screen (although I wasn't impressed by the makeup job on the mom).  Never mind that since becoming a mom I'm a total sap, please show one of the things I'm most worried about and I become a mess.  And this is a movie about aliens and other creatures.  We were in a dark theater and I didn't want to freak out my nieces and nephew, so the tears were just streaming down my face--I was able to contain my sobs until much later.  This happened at the beginning and end of the movie.  Holy crap, I wish I'd had some warning about that.

With this recent memory floating in my head, I had a bit of a scare this week.  Every time I have some ache or pain my mind immediately goes to the worst case scenario.  While in Maine, I got some stomach bug for the day.  I still don't know what caused it--I ran a 10k that morning and felt fine and got home from that and it went downhill from there.  Nobody else in the house was afflicted. I'd been having pelvic pain on and off for a few weeks and I finally reached out to my oncologist, who told me to reach out to the surgeon that had removed my ovaries.  We talked about my symptoms and she sent me in for a CAT scan.  She suspected it might be appendicitis or kidney stones.  During the CAT scan they kept asking me about having my ovaries removed and why.  It was strange and of course led me to think that they had found something BAD.  Why do they keep asking questions?

I waited the rest of the day for a phone call with the news.  I was trying to prepare myself mentally for the worst.  I never got a call back, so I called the surgeon first thing the next morning.  The staff was really apologetic and I finally got a call--the scan was clean.  Appendix was fine, no kidney stones, I was just a little backed up (sorry for the TMI).  Phew.  The NP did say I might want to let my oncologist know that they found a bony island in the scan and the oncologist might want me to get a bone density test.  The NP stressed repeatedly that this was probably nothing. I looked up bony islands and my stomach dropped again.  Sure they can be nothing, but it can also mean the cancer has metastasized.  I immediately emailed my oncologist and she responded within the minute letting me know she was not worried.  I'd just had a bone density test a few months ago.  Now I feel okay.

Which leads to my ongoing frustration about my post-treatment life: At what point will I stop assuming the worst?  Right now it feels like never.  Thankfully, I feel great most of the time.  But my mind can't help but go to the worst case scenario when I'm not feeling 100%.

One aside: The CAT scan technician was an Irish woman with a really thick accent.  I understood about every third word she said.  I thought she said she'd had breast cancer when she was 21 (I guessed her to be maybe a few years older than me now).  She'd had a mastectomy on the breast with cancer, but never had the other breast removed.  She had never been tested for the BRCA gene but there's a strong family history of both breast and ovarian cancer.  She told me I was really brave for having my ovaries removed.  Honestly, I was a little insulted.  I'm not brave--I'm doing what I need to do to put my mind at rest and not have to live in fear for the rest of my life.  I'm going to live in fear anyway.  I don't really find that brave.